About Wilson Recipes – Recipes Adapted to Wilson’s Disease
Recettes Wilson was founded with a very personal mission: to help people with Wilson's disease better manage their diet and improve their quality of life through recipes adapted to their condition. This project was born from the journey of Mégane Imbert, a patient with this rare genetic disease, who decided to share her experience to simplify the lives of other patients and their families. Mégane Imbert's journey It all started several years ago, when Mégane Imbert was diagnosed with Wilson's disease at the age of 20. This disease, although rare, has significant consequences on the metabolism of copper in the body, leading to its accumulation in the organs, particularly in the liver and brain. The symptoms of this accumulation can be serious, ranging from neurological disorders to organ failure. Mégane remembers the shock and frustration she felt when she learned of her diagnosis. Information about the disease was limited and medical recommendations, although useful, were often difficult to apply on a daily basis. One of the biggest challenges she faced was having to follow a strictly low-copper diet, without knowing how to adapt her meals while remaining healthy and balanced. The Genesis of Recettes Wilson Aware of the lack of practical resources for people living with Wilson's disease, Mégane decided to take matters into her own hands. Drawing on her knowledge of nutrition and cooking, she began experimenting with recipes adapted to her diet, excluding all foods rich in copper, while seeking to preserve the pleasure of eating. Over the months, she began to write down her recipes, share them with family and friends also affected by the disease, and see the benefits of an adapted diet on her general well-being. This motivated her to create Recettes Wilson, a site dedicated to sharing practical food solutions for all those faced with this pathology. In addition to recipes, Mégane also wanted to create a support space, a place where patients, families and caregivers can share their experiences, find advice and be inspired by the stories of others living with Wilson disease. The Evolution of Recettes Wilson This project, which started modestly, quickly grew. Recettes Wilson has become much more than just a recipe site; it has become a reference source for patients and caregivers. The site now offers a wide range of adapted recipes, from main dishes to desserts, while offering practical advice on eating healthy without copper. Today, Recettes Wilson is an active community where patients can exchange, support each other and find solutions adapted to their lifestyle. Mégane continues to develop the site by adding new recipes, publishing inspiring stories and collaborating with health experts to provide reliable and up-to-date information on Wilson disease. Long-term goal The ultimate goal of Recettes Wilson is to provide comprehensive resources accessible to all those living with Wilson's disease, by creating a space for sharing and mutual support. Mégane and her team are determined to continue improving the site and providing innovative recipes, practical advice and medical information to help patients lead healthy and fulfilling lives despite the disease. At the same time, Recettes Wilson is committed to supporting medical research on Wilson's disease, by donating a portion of the profits to research institutions and associations working to raise awareness and prevent this rare disease.
Our Values
At Recettes Wilson, we firmly believe that nutrition plays a vital role in the management of Wilson's disease . However, we also know that this approach must be accompanied by strong human values, which guide our daily commitment. These values are at the heart of every action, every recipe, and every project we undertake. Here is what defines Recettes Wilson:
1. Empathy and community support
2. Accessibility and simplification
3. Responsibility and reliability
We understand that living with Wilson's disease can be a difficult journey, both physically and psychologically. That is why we make it a point of honor to offer real and tangible support to each visitor to our site. By creating an active community, we allow patients and caregivers to share their personal experiences, help each other, and raise awareness of this rare pathology. We believe that mutual aid is a key factor in better understanding the disease and its issues. That is why we encourage a space for discussion, where each testimony, each question, and each answer is important. Our goal is for each patient, each caregiver, to feel supported and understood throughout their journey.
Managing Wilson’s disease involves many challenges, especially when it comes to diet. The restrictions are strict, and implementing appropriate diets can seem overwhelming. Our mission is to make this task simple. By providing simple, practical, and accessible recipes, we want every patient to be able to eat a balanced diet while respecting medical recommendations. Our recipes are designed to be easy to prepare, even for those who do not have a lot of time or cooking experience. We provide clear instructions, substitution tips, and advice on adapting ingredients to suit local preferences and availability.
We understand the importance of providing reliable and verified information, especially when it comes to health. That's why we are committed to working with nutrition experts and healthcare professionals to ensure the accuracy of our recommendations and recipes. We regularly update our content to provide you with the most relevant and up-to-date information. Our site draws on reliable medical resources and scientific studies to provide dietary advice that is consistent with healthcare professionals' recommendations regarding Wilson's disease. We understand that incorrect information could have serious consequences for our users, which is why we have made reliability our priority.
4. Innovation and adaptation
5. Commitment to research and ethics
6. Accessibility for all
Managing Wilson’s disease requires innovation and adaptability. Every patient is unique, and their dietary needs may vary. We are committed to being proactive by offering a wide range of recipes, experimenting with new cooking techniques, and drawing on recent discoveries in the field of nutrition. We continue to develop new recipes that respect the principles of the low-copper diet while being varied, modern, and tasty. We are constantly testing food alternatives to give each patient the opportunity to enjoy diversified and balanced meals.
At Recettes Wilson, we know that scientific research is crucial to improving the care of patients with Wilson's disease. That's why we are committed to actively supporting research. A portion of the profits generated by the site is intended for medical institutions and research organizations that work to better understand the disease. We also promote awareness of Wilson's disease, by collaborating with associations and research centers. Our ethics are based on transparency and respect for patients' rights, ensuring that all data collected through our site is used responsibly.
We believe that everyone deserves to eat healthy, regardless of their budget or geographic location. In addition to offering simple recipes, we strive to make our recipes accessible to everyone, by choosing common ingredients that are easily found in stores. Our goal is to democratize access to quality food, while respecting the requirements of the low-copper diet. We understand the financial difficulties that some patients may face. Thus, we try to offer economical and affordable recipes so that everyone can enjoy the benefits of a healthy diet without breaking the bank.
Who are we ?
Who are we? Recettes Wilson is much more than just a cooking site: it is a committed community, a project led by patients, caregivers and nutrition experts, all united around the same goal: to offer food solutions adapted to people with Wilson's disease. We know how much nutrition plays a fundamental role in the management of this rare genetic disease. We have therefore decided to create a unique space, where everyone can find adapted recipes, practical advice, and above all, support and motivation to better live daily with this pathology. 1. Mégane Imbert: a committed patient, founder of Recettes Wilson Behind Recettes Wilson, there is above all a woman, a fight and a mission. Mégane Imbert, the founder of the site, herself suffers from Wilson's disease. Diagnosed at the age of 20, she was faced with the difficulties related to nutrition, the need to follow a strict diet, and the lack of practical resources adapted to this disease. Faced with these dietary challenges, Mégane began to research, experiment and test low-copper culinary alternatives. Her goal? To eat a varied, healthy and tasty diet, without compromising her health. 💡 This is how Recettes Wilson was born: a personal project that has become a real guide for all those living with Wilson's disease. Mégane is not only a recipe creator: ✔ She shares her experience and knowledge through accessible and concrete content. ✔ She collaborates with experts to guarantee the reliability of the information offered. ✔ She supports the community by highlighting inspiring testimonials and practical advice. "I want everyone affected by this disease to be able to cook with confidence, without feeling limited or deprived." – Mégane Imbert 2. A team committed to better nutrition Recettes Wilson is also supported by a multidisciplinary team, composed of: ✅ Nutritionists and specialized dieticians → Who validate and adapt the recipes to ensure that they comply with medical recommendations. ✅ Patients and caregivers → Who share their feedback and test the recipes to ensure their simplicity and accessibility. ✅ Medical experts and researchers → Who help us disseminate reliable information and raise awareness of scientific advances on Wilson's disease. ✅ Web developers and SEO specialists → Who ensure that our site is easy to access and well referenced, so that patients can find the resources they need in just a few clicks. 3. Our commitment to the community At Recettes Wilson, we know that each patient's journey is different, and that everyone can make a contribution. This is why we are committed to: ✔ Creating a community of mutual aid → So that patients and caregivers can exchange, ask questions and share their experiences. ✔ Providing reliable and validated content → By working with healthcare professionals to ensure the relevance of the information. ✔ Raising awareness among the general public → By making Wilson's disease, its symptoms, and the importance of appropriate care known. ✔ Supporting research → A portion of the site's profits is donated to research organizations, in order to contribute to medical advances and future therapeutic solutions. We believe that no one should face Wilson's disease alone. Recettes Wilson is a space where each patient can find practical solutions, but also a place for exchange and sharing, where you can support and be supported. 4. Why trust us? 🟢 Expertise based on real experience → We know the difficulties of the low-copper diet, because we experience them every day. 🟢 Adapted and validated recipes → Each recipe is designed with care and rigor, taking into account specific nutritional constraints. 🟢 An independent and transparent site → We are not affiliated with any laboratory or agri-food brand, thus guaranteeing neutral and reliable information. 🟢 A regular update → Our content is constantly evolving based on new research and medical recommendations. Our only goal is to help each patient with Wilson's disease to better live with their condition, by offering them concrete, accessible and caring solutions.
